Category Archives: Auto Immune Disease

Rare auto Immune disease called Antiphospholipid Syndrome. Survival and daily life of living with a disease after its destruction.

Kids Do The Funniest Things

My 3 year old showing me how to Gangnam Style. How did he even know how to do this? I was laughing to hard. The reason I live!


My memories, My Memoir

Since I became disabled from a rare autoimmune disease, I have found that writing was very therapeutic. Being able to write my thoughts down on paper was keeping me sane. The disease took my ability to live the life I knew. I had to learn to live the new life I was given because of the destruction from my disease. My doctor even told me that my life would make a great book. It took a few years to realize I had a lot to offer readers.


Since starting to write my memoir book I have come across a few critics, mainly myself. Who would want to read this? You do not even know the first thing about writing. Being an author takes years of training. Just a few self doubting phrases that my inner critic throws out at me to keep me from my goal. I have to quiet that part of my mind and allow myself to just let my pen flow. A few other people in my life have also made statements that I took to heart and began thinking that maybe they are right. Maybe I am dreaming to big. I began to think that if I listened to every “negative Nancy” that I have come across in life, I would not have done many things. I use that as motivation to push me through my web of doubt. I had to build confidence within myself to know that I want my story to be told.


The thought of what my family might think of some of the things I have put on paper does not hinder me, or keep me from writing. If it was not for my family, I would have never had some of the best experiences throughout my life, some good, some bad. My family did put the “D” in dysfunctional. I have told them that this is my memory and emotions that made me who I am today. If they wanted to tell the world their side, by all means write yourself a memoir book.


The problems I face in my writing is the fear that my writing is vague and emotionless. Emotion is something I buried with 21 years of alcoholism. I am learning how to convey emotion in words, and not just feeling. I find myself tearing up when I dig deep and write my deepest emotional memories. Even if this book never makes the shelves, I will have healed very old wounds that I harbored deep inside myself. My only regret about writing this memoir, is that I did not start it sooner!

The Reason I write!


I was diagnosed with a very rare autoimmune disease in April 2010 called Antiphospholipid Syndrome. This disease destroyed my life and left me disabled. For six months I could not even walk, I sat in my bed and watched television. So many thoughts and emotions were going through my mind, I was going stir crazy in my four walled cell. I decided to start writing everything down just to clear my thoughts. For a while writing was therapy for me, and my mind was able to clear up like the clouds parting ways after a winter storm. It felt great to be able to focus back on my life and live for the day. I kept writing because it had started to become second nature, my therapy started to turn into an obsession.

At one of my doctors appointments my physician mentioned that I should write a book. Of course I laughed thinking that there was no way a regular “Joe” like me could write a book. My vocabulary for one was very limited, so I thought. What my doctor had said to me was stuck in my mind, like a post it on the refrigerator. I started to thumb through all my writings and started to build confidence that maybe my doctor had something in what he said. I started to organize the mess I had written down, and soon realized I had the makings of a great Memoir book. I started reading as many books on the subject as I could get ahold of. Researching endlessly on the Internet for tips and clues as to how I could actually turn this obsession into something the world could read.

So, here I am today. Blogging, face-booking, and spending hours on end building my skills as a writer. A few years ago I would have never thought that I would be here today. I have come a long way from scribbling on a note pad, and I can only hope that the world is ready for me.